Owning your worth
What does it mean to be a patient advocate and to ‘own your worth’?
When Terri Coutee received her second diagnosis for breast cancer she was mistakenly diagnosed with incurable metastatic disease. This prompted her to blog about her experience and advocate for others.
Luan and Terri talk about how Terri went on to set up not-for-profit DIEPC Foundation, and create a 24/7 library of educational resources to help those affected by breast cancer make an informed decision about reconstruction after a mastectomy.
Be sure to listen out for the poem Terri melodiously reads that so beautifully sums up the work of patient advocates #WorkIsLoveMadeVisible
Luan and Terri also talk about:
The role of a patient advocate
Keeping calm when things go wrong!
Importance of open dialogue
How we can all learn from each other
Responsibilities of patient advocacy
Improving patient outcomes
Tips for navigating conferences as an advocate
Listen to this episode
Links:
DIEPC Foundation website
DIEPC Journey private Facebook group
DIEPC Instagram
Where you can find Luan:
If you’ve found any of the content upsetting, please reach out and get help. Breast Cancer Network Australia has a free confidential helpline – 1800 500 258. Beyond Blue has a range of free resources online, or you can call them 24/7 on 1300 224 636.
